Alice's Story

Alice's parents, Gemma and Matt, are running this year's RSBC Blindfold Run 2018 in aid of their daughter, Alice, who was born with a congenital cataract in her right eye that has left her visually impaired. This is their story of sight loss.

“Alice was born on 8th February 2017. Unfortunately, during her newborn checks doctors couldn’t detect the red reflex in her right eye. She was diagnosed with a congenital cataract- a rare condition affecting around 100 babies born in the UK every year.

"In March 2017 Alice had her first operation as a tiny six week baby to remove the cataract. Unfortunately for Alice she contracted Glaucoma almost straight after her surgery. Glaucoma is damage to the optic nerve caused by a build up of fluid in the eye, and if left untreated, will result in blindness.

"To date Alice has needed two laser surgery treatments and two major surgeries to implant extra drainage tubes within her eye. Her daily routine includes nine eye drops as well the continued use of medication, contact lenses and patching. At 20 months old this is obviously very stressful for both Alice and us as parents, mainly as she is still too young to understand what is happening.

"Despite this, Alice is a happy toddler who hasn’t let her condition hold her back. She attends nursery 3 times per week and we see improvements almost every day when we pick her up. The team at Busy Bees Nursery, along with support from the RSBC Family Support Service, have played a key role in Alice’s life and her development. To raise awareness and funds for the RSBC, myself, Matt and eight staff from Alice’s nursery have decided to take part in the RSBC Blindfold Run 2018”

So far Team Run4Alice have raised over £1000 for RSBC and have a bake sale coming up on the 11th October. We wish them all the best of luck in their training and can’t wait to meet them on 4th November.

Feeling inspired by Alice? There's still time to sign up for this year's RSBC Blindfold Run taking place on the 4th November.

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