One-to-one support for your whole family if your child has Retinoblastoma.
Deterioration or loss of sight from Retinoblastoma doesn’t just affect your child - it affects your whole family. We know that as a parent, you need support too.
Our Family Support Service provides practical and emotional support at every stage of your family’s experience, whether you’ve recently found out about your child’s sight condition, or if their sight loss is part of other needs.
Coping with a diagnosis
Discovering that your child has a sight condition can be a difficult and confusing time. You may feel anxious about what the future holds and have lots of questions.
We are on hand from the moment you hear the news, helping you to understand the condition and prognosis, adapt to its challenges, and build confidence so that your family can access every opportunity to ensure you have fulfilled and happy lives.
Helping you to access practical support
There are many ways to access practical, emotional and financial support, but finding and using them can be confusing.
We can help you identify and access the support that best meets the needs of you and your family.
We'll be there to support you in dealing with a range of professionals and statutory bodies in a wide range of unfamiliar situations.
Supporting your child’s development
You will have some important decisions to make about your child’s future, including their education.
We’ll help you to explore all the options so that you can make the right decisions for your child and your family. We’ll also give you the confidence to take the lead in developing your child’s independence and life skills, so that they have the courage and motivation to explore, learn and play.
Meet our experts
One of our dedicated experts will work with your family on an individual basis, offering as much or as little support as you need, to help you give your child the very best chances in life.
Find us in your area
The Family Support Service operates across England and Wales, and is available to blind and partially sighted children and young people from birth to 25 years old.
Are you a professional working with blind or visually impaired children or young people? Find out how we can help you to improve the support that you offer.
Make an enquiry
If you'd like to find out more about what the Family Support Service could do for you, register your details below and a member of our team will be in touch. If you'd like to find out more about Retinablostoma, you can visit the The NHS Choices website.