Meet our experts
Dealing with a child’s sight loss can often be lonely and confusing. We think it’s important for you to have a single point of contact for your questions; someone you can trust and who can be there for you whenever you need them.
When you access our Family Support Service, you will be matched with a dedicated expert who will work with you and your family on a one-to-one basis.
With a huge range of experience across several sectors, our experts can help you navigate any challenges you may face.
By offering you as much or as little support as you need, our experts will work with you in whatever way best suits your family.
Meet Family Engagement Worker, Carol
Carol works with families and vision impaired young people aged 0-25 years old living within the North East, providing practical and emotional support.
"As a Family Engagement Worker, my role is to help families understand and come to terms with their child’s visual impairment diagnosis and think about the impact that diagnosis might have on the family.
This could range from the family’s relationships, the impact on other siblings, how it may affect the child’s cognitive and physical development or their ability to build friendships.
The support I offer is very much dependent on the individual needs of the family and may involve home visits, in addition, to support via telephone/email."
Meeting families for the first time
"Typically one of the first things I’ll do in terms of getting in touch with a family is set up an initial home visit where I’ll meet everybody and take them through a guided interview with some specific questions to get to know them and find out more about their situation.
This helps me to identify what support they might need, whether that’s emotional and practical support, or perhaps I would offer to introduce them to other appropriate services."
What does this support mean for families?
When receiving a sight loss diagnosis many parents are left with questions. Questions like; what does this diagnosis mean for my child’s future? How can I support my child with their development?
Our Family Support Team is here to help parents navigate through the uncertainty and plan for their family’s future.
For example, one of our Family Engagement Workers could work with a young person when they are having problems at schools, such as helping with teachers not understanding or making necessary reasonable adjustments for their visual impairment. The worker would help the young person to identify strategies which might help them to improve their situation.
Our Family Support Workers provide practical support to any member of the family, generally via telephone/email, for example, completing applications for benefits and grants, and help to find local services and activities.
If you'd like to find out more about what the Family Support Service could do for you, register your details below and a member of our team will be in touch.